Workshop: Adolescents and young people living with a disability or chronic condition – sharing research experiences

This will be a workshop for sharing experiences; it will look at methodological approaches as well as thematicissues. Please let us know if you would be happy to offer a speed talk (5 mins) on this topic/related.

Agenda:

1:00 - 1.30 Lunch and networking

1.30 - 1.40 Introductions Maria Zuurmond

1.40 - 2.00 External speaker – Anna Spathis: ‘Fatigue in young people with cancer’

2:00 - 3.00 Speed talks: emphasis on sharing good practice & learning from our mistakes!

• Shivani Mathur Gaiha - Engaging youth to understand disability: The CREATORS Experiment .
• Mary Wickenden: Participatory research with disabled children working as peer researchers ! Lessons learnt
• Jane Wilbur (Wateraid/LSHTM): Participatory research with adolescents and youth with disabilities in Nepal on menstrual hygiene.
• MENISCUS-2: Menstrual health interventions and school attendance among Ugandans” (Helen Weiss and team)

3:00 - 3.20 Coffee

3.20 - 4.00 Alicia Renedo: Reflections on the use of drawings and diaries when doing research with young people with chronic conditions

3.40 - 4.30

• Cicely Marston: Ethical issues in research with young people with disabilities and chronic conditions
• Violence against adolescents with disabilities (UNICEF team, TBC)
• Constance Mackworth-Young: adolescents, HIV and disability
• Maria Zuurmond: Research with young people with intellectual impairments- beyond tokenism

4.30 - 4.45 Plenary and next steps

This event is organised jointly with the International Centre for Evidence in Disability (ICED) and the Centre for Maternal, Adolescent, Reproductive, and Child Health (MARCH),

Please email Maria Zuurmond know if you are interested in speaking.

Register today to secure your place!